National Organization for Rare Disorders (NORD) CTX: NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
National Institutes of Health–Genetic and Rare Diseases Information Center CTX: Find additional information on CTX on this page, hosted by the US Department of Health and Human Services.
United Leukodystrophy Foundation: Leukodystrophies are diseases that affect the white matter of the brain. CTX is sometimes characterized as a leukodystrophy. The United Leukodystrophy Foundation maintains a CTX page and has a discussion forum where people with CTX and their families can connect and offer support.
Real people with CTX
Note that Retrophin, Inc. cites the above-named external resources for information purposes only, and does not endorse or guarantee in any way the services or advice provided by them.