The information contained in this website is intended for healthcare providers and not for the general public.
National Organization for Rare Disorders (NORD) CTX: NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
National Institutes of Health – Genetic and Rare Diseases Information Center CTX: Find additional information on CTX on this page, hosted by the US Department of Health and Human Services
United Leukodystrophy Foundation. Leukodystrophies are diseases that affect the white matter of the brain. CTX is sometimes characterized as a leukodystrophy. The United Leukodystrophy Foundation maintains a CTX page and has a discussion forum where people with CTX and their families can connect and offer support.
Mystery Diagnosis – video patient cases. Two cases of CTX have been featured on the television series “Mystery Diagnosis.”
https://www.youtube.com/watch?v=AGbs8zzlddU
https://www.youtube.com/watch?v=amDVKi3X7TY
Note that Retrophin, Inc. cites the above-named external resources for information purposes only, and does not endorse or guarantee in any way the services or advice provided by them.
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The information contained in this website is intended for healthcare providers and not for the general public.
Links to external sites are provided for informational purposes only and Retrophin, Inc. does not endorse or guarantee in any way the services or advice provided by them.